The Psychosocial Readiness Evaluation and Preparation for Hepatitis C Treatment (PREP-C) was developed by members of a working group of the New York City Hepatitis C Task Force:
Jeffrey J. Weiss, PhD, MS, Mount Sinai School of Medicine, New York, New York
Carolyn A. Licht, PhD, SUNY Downstate Research Foundation, Brooklyn, New York
Nirah Johnson, LMSW, NYC Department of Health & Mental Hygiene, Office of Viral Hepatitis Coordination, Long Island City, New York
Copyright © 2011 Jeffrey J. Weiss, Carolyn A. Licht, Nirah Johnson. All rights reserved.
Expert review was provided by Michael Carden, Virginia Curran, RN, Alain Litwin, MD, and Tracy Swan.
Development of the PREP-C was supported by funding from National Institutes of Health – National Institute of Mental Health (Grant # MH071177), New York State DOH AIDS Institute, and The Robin Hood Foundation.
Development of the PrepC.org web site was supported by an unrestricted educational grant from Kadmon Pharmaceuticals, LLC
Some of the questions in the PREP-C were adapted from other sources with permission. These questions numbers and the corresponding original sources are listed below:
SU1, SU2, PS3, PS5, PS6, PS7 – Client Diagnostic Questionnaire (CDQ). The CDQ is based on the Patient Health Questionnaire (PHQ) version of the PRIME-MD, a mental health tool developed for use in primary care settings by Robert Spitzer and colleagues [Spitzer, RL, Williams, JBW, Kroenke, K, Linzer, M, deGruy, FV3rd, Hahn, SR, Brody, D, Johnson JG (1994). Utility of a new procedure for diagnosing mental disorders in primary care. The PRIME-MD 1000 study. Journal American Medical Association, 272, 1749-1756; Spitzer, RL, Kroenke, K, Williams, JB (1999). Validation and utility of a self-report version of PRIME-MD: the PHQ primary care study. Journal of American Medical Association, 282, 1737-1744.
PS4 – The Irritability Questionnaire Craig, KJ, Hietanen, H, Markova, IS, Berrios, GE. (2008). The Irritability Questionnaire: A new scale for the measurement of irritability. Psychiatry Research, 159, 367-375.
EL2, EL3 – Fatigue Severity Scale Krupp, LB, LaRocca, NG, Muir-Nash, J, Steinberg, AD. (1989). The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Archives of Neurology, 46, 1121-1123.
CF3 – Single Item Literacy Screener Morris, MS, MacLean, CD, Chew, LD, Littenberg B. (2006) The Single Item Literacy Screener: Evaluation of a brief instrument to identify limited reading ability. BMC Family Practice, 7, 21. The Single-Item Literacy Screener is Copyright @ 2006 by The University of Vermont. All rights reserved.
CF4, CF5 – Medical Outcomes Study HIV Health Survey Wu AW, Revicki DA, Jacobson D, Malitz FE. (2007) Evidence for reliability, validity and usefulness of the Medical Outcomes Study HIV Health Survey (MOS-HIV). Qual Life Res, 6, 481-93.
Support for the development of the website came from an unrestricted educational grant from Kadmon Pharmaceuticals, LLC.